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News archive    2017   
  • UK Proton Beam Therapy Units to open from this year

    Proton Beam Therapy (PBT) will arrive in the UK from 2018, with sites opening at The Christie Hospital in Manchester and UCLH in London by 2020.



    The new sites will see an extension of the service currently offered to some patients referred to the USA for treatment for some specific types of brain tumour.

     

    brainstrust represents the brain tumour community on the Proton Beam Strategy Group, led by the National Director, Adrian Crellin. So we're well placed to ensure that the community's voice is heard. It means we are at the heart of this new service.

     

    More information will be following about who this treatment is appropriate for and what the risks and benefits are of this treatment. If you’d like to know more about PBT and other types of radiotherapy, you can read our resource here or just give us a call on 01983 292 405.




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    Category: Brain News | Published: 15 January 2018
  • Incubator day in Leeds a success

    On Friday 8th December 2017, brainstrust and the NCRI (National Cancer Research institute) held an Incubator day aimed at designing a clinical trial for early diagnosis in patients who are diagnosed with a brain tumour.

     

    The incubator day was a interactive workshop where primary care specialists, neurologists, and researchers interested in the area met to discuss potential proposals for clinical research. The NCRI Early Diagnosis Group was supported by members of the Leeds Clinical Trials Unit, Health Economists, Research Design Service members, patients and charity representatives.

     

    A potential randomised study of patients with “headache suspicious of cancer” to different pathways to care was discussed but it was considered too early for such a study and the clinical endpoints need to be better considered.

     

    A prospective multi-centre study of “headache suspicious of cancer” looking at the red flag features in the history, the value of a simple screening test of cognition and other features prior to imaging, will be developed – led by Dr. Robin Grant (Neurology, Edinburgh); Prof Richard Neal (Primary Care, Leeds) and Prof Leone Risdale (Prof Neurology and General Practice, Kings College, London). Other Centres involved will...



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    Category: Research News | Published: 15 January 2018
  • Scunthorpe couple raise incredible total for brain tumour support

    Chris Bassenger is a member of the brainstrust Meet Up group in Hull. Chris came to brainstrust for help and advice after he was diagnosed with a brain tumour. We offered a second opinion, and Chris wanted to raise money to give something back to the brain tumour community.

    With his wife, Laura, and family and friends, Chris held a fundraising event in North Lincolnshire, raising £1,646.27!

    brainstrust helped me with a second opinion. From this, I was referred to an epilepsy specialist, and brainstrust continued to support me. I felt someone was listening and focused on making improvements to my quality of life. It’s the fact that there is someone there to listen, and someone to speak to, that’s why I come to the meet up group. It’s something to look forward to. It helps."

    “I wanted to give something back so organised a fundraising event. The money raised will pay for a brain box for 30 people with a brain tumour diagnosis. It makes me feel good that I could help someone else.”

    If you are inspired by Chris’ story, and you...



    Read full story
    Category: Fundraising News | Published: 3 November 2017
  • UK Brain Tumour Symposium (formerly the UK Brain Tumour Summit) sells out in 48 hours

    UK Brain Tumour SymposiumLast week we announced, with Brain Tumour Research, the first UK Brain Tumour Symposium to be held jointly between our two organisations. The event is to take place in Milton Keyne's on the 12th Ocotber 2017. Following the launch on Friday 18th, the event was full by the Sunday evening with a waiting list now open. 

     

    On this, brainstrust's Chief Exectutive, Will Jones says,

    "Of course this is great news that there is such demand from our community for information on the latest treatments, brain tumour support initiatives and of course on research and campaigning for a better world for people with a brain tumour. We have an exciting programme for this event which I am sure people will find engaging, empowering and useful. On the flipside I understand it is frustrating for those that have been keen to join us and who haven't been able to register succesfully. Straight away we know that we must run the event again next year, and we will be working hard to generate the funding needed to cater for the demand. Thank you for your...



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    Category: Charity News | Published: 25 August 2017
  • Join us for the UK's first joint Brain Tumour Symposium

    brainstrust and Brain Tumour Research are proud to present the UK's first joint Brain Tumour Symposium (formerly the UK Brain Tumour Summit), an event for brain tumour patients, their friends and family, who are genuinely interested in helping us campaign for change.

     

     

    Taking place on 12th October in Milton Keynes, the Symposium brings together leading experts from many areas of brain tumour support and research. This is your chance to meet the doctors, scientists, patients, caregivers and charities who are leading the way in brain tumour research, support and campaigning.

     

    This free event will help you to understand the progress that is being made across many fronts in the work against brain tumours.

     

    Our aim is to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being...



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    Category: Charity News | Published: 14 August 2017
  • Carrie Holbrook, campaigning for the brain tumour community

    Since losing her husband to a brain tumour, Carrie Holbrook has been campaigning to raise awareness of brain tumours and improve outcomes for people with a brain tumour.


    She is delighted that brainstrust and Brain Tumour Research are working together to present the UK’s first joint Brain Tumour Symposium, which aims to provide an educational, collaborative and transparent focus on the biggest issues facing the UK brain tumour community today and the specific advances that are being made.


    Carrie said: “The UK Brain Tumour Symposium is a great opportunity to bring leading experts from brain tumour support and brain tumour research together. It will give people affected by brain tumours the chance to find out more about the progress and advances that are being made in many areas including brain tumour research, quality of life and living well.


    “Brain tumours are the biggest cancer killer amongst the under 40s, so it’s important to raise awareness, and this event is a great way to do that.”

     






    Read full story
    Category: Charity News | Published: 14 August 2017

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