Money matters

As if you haven’t got enough to worry about. Having a brain tumour will, at some point, impact on you financially as well as physically and emotionally. The same guiding principle applies – look this tiger in the eye. The more prepared you are, the better you will be prepared if you need additional financial support. It’s much better to be proactive, than reactive. The good news is that there is a wealth (pardon the pun) of support out there.

Too much to take in? Give us a call on 01983 292 405 and we’ll talk you through it.

The brain tumour hub

Firstly, have a look at the finance section of our brain tumour hub, where lots of useful financial services are listed. Click here to use this online tool.

The Little White Book

If you’d rather see a printed version of the financial services listed on the brain tumour hub, then look online at Section 6 of our Little White Book. We can pop a copy in the post – just email hello@brainstrust.org.uk and we can send you a hard copy version. Or, the book is available to see online – simply click here.

Benefits and finance

Call Macmillan Benefits Line 0808 801 0304

Help with the Cost of Cancer is an excellent booklet, published by Macmillan. It provides information about all of the different kinds of help available for people with cancer. Download it here.

A Guide to Grants for Individuals in Need
(Directory of Social Change ISBN: 1-903991-52-8) is a directory published each year of over 2000 charities and trusts that will provide financial help to people in need. It may be available at your local library.

Independence at Home is a Trust which will make grants towards any expense which is not covered by statutory provision and which is related to the needs of a person living at home with a disability. Apply by letter to:

Mrs Mary Rose
4th Floor
Congress House
14 Lyon Road
Harrow
HA1 2EN

www.turn2us.org.uk believe that no one should have to live in financial hardship. So if you’re struggling financially or you’re worried about money, visit their website. It also has a free, confidential helpine and independent service for people who do not have internet access or need help to use it. The service helps people in financial need access the money available to them through welfare benefits and charitable grants.

Call on: 0808 802 2000 (9 am-8 pm Mondays-Fridays)

Calls are free for all landlines and for major mobile network providers (including ‘pay as you go’ phones) – EE, Orange, 3, Vodafone, T-Mobile, Virgin and O2 – charges may apply for other network users. However, this is not guaranteed and we recommended you check with your provider.

This website is really useful in terms of explaining what is available if changes to housing are needed:

https://www.disabilityrightsuk.org/housing-grants

Again this one explains how you can be assisted in applying:

https://www.citizensadvice.org.uk/housing/moving-and-improving-your-home/help-with-home-improvements/

Travel Insurance

If you have a health problem, such as brain cancer, you will probably find it tricky trying to get travel insurance. You should always be honest about your condition; if you aren’t and then you claim, the policy will be invalid.

There are options and you will need to set aside some time to find the best policy. You will be asked for loads of information, so put the kettle on and settle down with a cup of tea as you make the call. You will be asked the following:

  • Personal information – names, ages, contact information
  • Your travel plans – where, when and for how long
  • Medical information – be prepared to talk about your diagnosis, treatment, medication, when you last saw your GP, symptoms

There is a comprehensive list of travel insurance providers (who we know patients have used) at www.braintumourhub.org.uk

Financial help with medication

Sometimes when living with a brain tumour you are automatically entitled to free prescriptions. And sometimes you can apply for certificates that entitle you for free medication. Some prescribed items are always free (such as medication given to hospital inpatients). Your prescriber can help you as can this link:

https://www.nhsbsa.nhs.uk/help-nhs-prescription-costs/free-nhs-prescriptions

This link explains about medical exemption certificates and which conditions are covered:

https://www.nhsbsa.nhs.uk/exemption-certificates/medical-exemption-certificates

And of course you can always call brainstrust on 01983 213405 or email hello@brainstrust.org.uk

Date published: 17-05-2009
Last edited: 28-08-2012
Due for review 28-08-2014