Your brain tumour and work

Working before or after treatment

From the point of diagnosis, you may want to think about your options for working and education. Many people choose to work around treatment – returning to work as soon as they feel able to after treatment. People with brain tumours may face issues that may make continuing to work or returning challenging. These might include:

  • Fatigue
  • Cognitive deficits (concentration)
  • Personality or mood changes
  • Mobility issues
  • Memory problems

Some may take longer to return to work, or change the type of work they do. Some people may never return at all, due to personal choice or because they are unable to. This can be a big change and a decision that might not come easily. It can be difficult to accept if you’re unable to return to work, but we can help you find a way forward. If this is something you’re struggling with, give us a call.

If you’re thinking about your options around work, here are some questions that might be useful to ask yourself:

  • What do you enjoy about working?
  • What do you need from work? Is the structure and purpose of your work important to you?
  • What adjustments might need to be made for you to return to work?
  • What can I afford?
  • What benefits could I receive if I stopped working? Maggie’s centres[3] have excellent advice about Benefits support.
  • What conversations do I need to have with managers / HR / colleagues, and how often?

What support might I need from friends and family to continue to work

Your rights

If you’ve been diagnosed with cancer, this is regarded as a disability by The Equality Act 2010, and you are protected from discrimination at work. This means that reasonable adjustments have to be made if you choose to continue to work there. You can find out more about your rights from these websites:

Macmillan

Disabilityrights.org

You may also be able to get additional support to do your job through the Access to Work scheme.

Access to work

Signs, symptoms and effects of your brain tumour could entitle you to support from the government’s Access to Work scheme. The scheme can help you pay for things that may enable you to access work or do your job if you need things that are beyond reasonable adjustments.

https://www.disabilityrightsuk.org/access-work

If you have complex work needs, you can ask your clinical nurse specialist for a referral to specialist vocational rehabilitation services.

Find out more about the practicalities of surrendering your driving licence, and how we can help you.

Voluntary work

Volunteering can help to build on your skills and confidence, whether you are between jobs, gearing up to full-time work or have chosen to leave a paid role. Even if you have a disability as a result of your brain tumour or treatment, you should still be able to access these roles. You can find out more about volunteering from these organisations:

https://www.gov.uk/government/get-involved/take-part/volunteer

https://www.scope.org.uk/Support/Disabled-people/local-advice/Volunteer

We are always looking for enthusiastic volunteers at brainstrust to help us help other people feel less alone and better supported. Whether you’re interested in marketing, raising money, supporting others with brain tumours or even knitting, we’d love to hear from you. Get in touch here.

Information for employers

If someone you employ has a brain tumour, there will be a lot to think about to ensure that you both feel informed and supported. It is worth catching up with your colleague regularly so that you can help with any adjustments and transitions. Macmillan have a fantastic new toolkit to provide guidance and practical tips for you and your employees – you can find out more here.

Your employee may be able to benefit from the government’s Access to Work scheme, which can sometimes pay for practical support to help your employee do their job, or access work more easily. Access to Work Factsheet for employers