Scanxiety

We’ve all been there. And we’ve all tried every which way to cope.

We’ve all been there. And we’ve all tried every which way to cope. Scanxiety is a known phenomenon (there is one study in lung cancer patients[1]); it describes the fear and worry associated with scanning, both before and after a scan and before the results are given. In an ideal world we wouldn’t have to have a wait between the scan and being given the results. But the reality is that scans often aren’t read on the day of the scan, let alone reported. There is a significant shortage of neuroradiologists so sometimes the delay can be more than two weeks.

During this time, our quality of life is negatively impacted upon. And it makes no difference where on the trajectory you are; in the early stages, patients who are successfully treated have underlying fear is about cancer returning and the dreaded implications. And in patients who have more aggressive tumours, the fear is based in scans’ potentially revealing a lack of treatment effectiveness or disease progression.

And then we become annoyed with ourselves for letting scanxiety own us, instead of us owning and dealing with the anxiety. Have a look at Taking Control.

Find out more about how brainstrust can help you stay in control while living with a brain tumour.

So what to do?

Here is some great advice by Tori Tomalia that could help. Accepting that this is a roller coaster ride and knowing that you will not be stuck in this place forever can help. Email brainstrust at hello@brainstrust.org.uk or pick up the phone to us 01983 292405. You don’t need to do this alone.

  1. Distraction
    Binge watch episodes of your favourite TV show. Dig into a great book and get lost in the story. Go somewhere fun that you have never been before. Treat yourself to something that will keep your mind busy thinking about anything but those scan results.2. Loud Music
    Crank up the radio! Blast 80s music! Belt show tunes! It’s hard think about scans while reenacting scenes from Flashdance, and I challenge you to feel anxious while singing “Don’t Stop Believin’.” Trust me, this is some magical stress relief. The science behind it probably has something to do with endorphins, but I am too busy right now rockin’ out to “Pour Some Sugar on Me” to care.3. Acknowledge It
    When scan time is coming near, I feel like I need to wear a sign around my neck warning people that I am not responsible for the words that come out of my mouth. I get short with people and am likely to snap at them for no particular reason. Acknowledging what I am feeling and why can help to make it more manageable for myself and those around me.4. Make Plans for the Worst Case Scenario
    While I always hope to get great news, I find that sometimes I can lessen the panic by knowing what the plan will be if the scans are bad. Cancer makes you feel powerless and at the mercy of the disease. Having a plan in place can give back some of that lost feeling of control.

    5. Spend Time with a Child
    I’ve written before about the incredible ability that small children have to live in the moment. For them, all that matters is what’s happening right now: this game of Go Fish, these orange slices, this third reading of The Very Hungry Caterpillar. Spend the afternoon with a little one and the worries will drift away for a few hours.

    6. Pretend You Already Got Good Results
    This is totally delusional, but sometimes I can trick myself into imagining that – hey, I already got the results, and they were great! Sure, it only lasts for a few seconds, but those few seconds are a lovely relief from the anxiety.

    7. Know When and How You Will Get Your Results
    My oncologist only gives the results in person, so I know I will not hear anything until our appointment on Tuesday. For me, knowing this is a relief (although waiting the weekend is a bit of a challenge!), so I don’t sit by the phone all weekend wondering if I am going to get a call. Discuss with your doctor how you will find out the results so that you don’t have the extra layer of anxiety, wondering when you will hear.

    8. Help Someone Else Out
    Sometimes, the best way to relieve your own stress is to help out someone else who is struggling. Help a neighbour, talk to a friend in need, shift the focus off of yourself for a while. It can be refreshing to worry about someone else for a change.

    9. Meditate
    There are many different strategies for calming the mind, such as deep breathing, praying, positive visualization and physical relaxation strategies. And if those don’t work….

    10. Medicate
    Let’s be frank, depression and anxiety are cancer’s annoying younger siblings who tag along and show up at the most inconvenient times. There is no shame in discussing these issues with your doctor and considering taking medication to help.

Sources

http://content.time.com/time/specials/packages/article/0,28804,2075133_2075127_2075107,00.html

https://www.curetoday.com/community/tori-tomalia/2015/02/10-tips-for-coping-with-scanxiety

Scanxiety, Feiler B. Fear of a postcancer ritual. Time. 2011;177:56.

[1] http://dx.doi.org/10.1016/j.lungcan.2016.08.002