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About brainstrust

brainstrust is a UK based brain cancer charity, dedicated to improving clinical care for brain tumour sufferers and providing co-ordinated support in their search for treatment. We provide support and advice at the point of diagnosis and beyond, by updating treatment, improving care and, ultimately, saving lives.

brainstrust – good for brains, bad for brain tumours

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A daily pulpit?

helen

It seems appropriate to be lanching the brainstrust blog on 1st January 2009. What exactly is a blog? A personal diary? A soapbox? A breaking news outlet? Memos? A shared space? Collective intelligence? A daily pulpit? I would hope that the brainstrust blog will become all of these things. But I know it won’t be daily!

It is important though that you, the brainstrust blog readers, join in the fun, the seriousness, the thinking, the imagination, the ideas, the news and views that will be appearing in the brainstrust blog.  We have no resolutions, just sheer determination that the world will become a better, more hopeful place for brain tumour sufferers and their families.

A strong, deeply rooted desire is the starting point of all achievement, and whilst brainstrust has achieved a huge amount, there is still a long way to go on our journey. I want a future where I don’t meet patients who have learned too little, too late, about their condition so that instead of making informed decisions about their treatment, they are planning how to spend the last few precious months.

I want a future where I don’t meet another parent who hasn’t been told what the options are for their child who has a brain tumour, so that they feel isolated, frightened and disempowered. brainstrust is fixing this. It is being done and with you onboard, we are the ones to do it.

So - join in the blog, join the fun and let’s get the job done.

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