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“It’s been great knowing we can get  support and strength from reading similar
experiences to ours.

I’ve often had a little look when I’ve been feeling a bit lost, and it’s really helped me smile”

Heidi, South Wales, 2011

Patient stories

"We read to know we are not alone."
C.S. Lewis Shadowlands

You will never need to hear a story as much as you do now. Through hearing other people’s narratives we are reminded that we are not the first person to have suffered in this way, although it feels like it. The pain isolates us and it simply feels private. It can't be shared. And in my experience, I think that is right. No amount of counseling, support or reading can take away the feeling of desolation it does feel like a one-person rope over the abyss. But I do know that hearing about other people’s experiences of brain cancer helped us to find our way on our journey. Here we have created a space for people like Meg to write their stories and share them with you. And if you want to add your story, then please let us have it.

Megs Story

Meg's story

A week before her 19th birthday, on July 22nd, 2004, Meg was admitted to A&E having lost consciousness at work. When she came round, she had no recollection of what had happened to her, nor what she had been doing for the previous few days. Work colleagues who were with her at the time described her symptoms and it sounded very much like she had had a seizure. She was always the reliable child - ask Meg to post a letter and you knew it would be posted. Not any more.

Read Meg's story

Andy's Story

Andy's story

My name is Julie; I am in my 30s and have two children. This is our history of events leading up to and during the time my husband Andy was diagnosed with a brain tumour. It is not intended to be a sad account; however, our journey together as a family has been challenging, but has also been one of hope.

Read Andy's story

Michael's story

Michael's story

I was only a little boy when I was first ill. I just didn't think much of it; I carried on running for my school and played on the 1st rugby team until I was admitted to the John Radcliffe in 1985. I also played mini-rugby for Henley. I knew I was ill but I had no idea how severe it was. The doctors didn't know, so how was I or my parents supposed to know?

Read Michael's story

Paul's story

Paul's story

At the age of sixteen things were pretty much perfect for me. I was good enough at school to be deemed 'one of the good guys' by the teachers. However, barely two months into being seventeen something happened that would change this state of 'near perfection' forever, and lead my life down a much different path to the one I had been lining up for.

Read Paul's story

Lynn EastLynn's Story

I was born in January 1966, am married to Paul and have a wonderful daughter, Katie. I worked as a radio operator in a control room, working 4 days on and 4 days off, had a good social life and we had 2 nice cars, lovely house, good holidays (the last one being Jamaica, Aug 2007). We also have one nutty collie and a blind rabbit!.

Read Lynn's Story

brainstrust brain tumour patient Richard RavenRichards Story

a tribute to a man who lived a colourful, exciting life, living every minute to the full. We are proud to have been able to support Richard and his family in their battle against a brain tumour. Richard's legacy not only lives on through his loving family, but in the donations made to brainstrust at his funeral. It is with these generous donations that we are able to keep our 24/7 brain tumour support line open, and send out more brain boxes than every before to our patients and their carers.

Read Richards Story

Beth's story - brain tumour treatment, brain tumour support and brain tumour diagnosisBeth's Story

"My experience was just like a game of snakes and ladders. At first, so many snakes I could not get on the first rung of the ladder. Eventually, the snakes did not last so long and the first ladder rung was in sight."

Read Beth's Story

Beth's story - brain tumour treatment, brain tumour support and brain tumour diagnosisBecky's Story

Becky's story is one of courage, hope and positivity. She is battling a grade 2 anaplastic oligodendroglioma, and along with it, the uncertainty of
'active observation', or to you and me, 'watch and wait'.

Read Becky's Story

Laura's story - brain tumour treatment, brain tumour support and brain tumour diagnosisLaura's Story

Laura was diagnosed with a low grade brain tumour in her left frontal lobe (in the motor/pre-motor function area) which was later found out was a grade 2 oligodendroglioma. She was put on "watch and wait" protocol. Unfortunately epilepsy followed in February 2011 starting with a grand mal in her sleep and then focal seizures in her right side. This story is about Laura and Ben explored all of the options available to them and arrived at a solution that we're hearing more and more about...

Read Laura's Story

Frances Paine brain tumour storyFrances's Story

Hi, My name is Frances, I’m 28, work as a Doctor in an Emergency Department and, oh, I have a Brain Tumour.

Even now, after the surgery, it seems like a very surreal topic to me as I do not feel like anything has changed (apart from the bad haircut) and yet everything has at the same time.

Read Frances's Story

Sarah's Story

Sarah Andrews tells us about the day she was diagnosed, how much she values the brain tumour community and how she channels her fear, isolation and confusion into beautiful poetry.

Read Sarah's Story

Leanne's Story

"I’m all about inspiring others and trying to make a difference in the BT world as I am one of the very lucky ones and am utterly determined to not let my experience go to waste"

Read Leanne's Story

Lucy's Story

Lucy Beesley was first diagnosed with a brain tumour at 19. Now, at 24, her tumour has returned. Here Lucy shares how she’s determined to live her life as normal as possible, as a young woman, in the face of a brain tumour that is so rare of a person her age.

Read Lucy's Story

Paul Korhonen's Story

Paul was on the threshold of retirement when he was diagnosed with a rare brain tumour. How will he cope as he uncovers more and more detail about his diagnosis? Does he opt for risky brain surgery or for a “watch and wait” strategy? And will his life ever be the same again?

Follow his personal journey from diagnosis to the present day.

Paul has written a book about his journey so far, and we share an exerpt here...

Read Paul Korhonen's Story

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