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  • Low Grade Brain Tumours:
    Understanding them. Treating them. Living with them.

    Wednesday 12th March 2014, 7pm – 7.45pm, GMT
    Photo: An image/advert to share, please: www.bit.ly/LowGradeLive

    Welcome to this online event for the brain tumour community, part of Brain Tumour Awareness Month. This is your chance to learn more about low grade brain tumours, put your questions to a panel of experts and to share your own experiences with others.

     

    The live panel discussion will broadcast on this page from 7pm on Wednesday 12th March, but you can submit your questions and start the discussion right now!

     

    Twitter hashtag: #LivingLowGrade

    Facebook comments: www.facebook.com/LivingLowGrade

    Email your questions and comments: LLG@ngomedia.org.uk

     



    What's it all about?

     

    This is your opportunity to learn more about low grade brain tumours (Grades I and II). You can put your questions to our panel, as well as share your own experiences, before the live broadcast even starts

     

    The panel features patients, experts and clinicians from across the brain tumour community. The video will also be archived on this page, for those who can't watch it live.

     

    Before the panel, as well as during the live broadcast, discussion and experience sharing will take place on social media.

     

     

    Who's on the panel?

     

    We've brought together a mix of experts and patients, to offer you a range of opinions and experiences about low grade brain tumours.

     

    • Gideon Burrows (chair), patient and author of Brain Tumours: Living Low Grade

    • Louise Taylor, head of communications, The Brain Tumour Charity

    • Helen Bulbeck, Director of Services, brainstrust

    • Andrew McEvoy, consultant neurosurgeon, National Hospital for Neurology (TBC)

    • Marie Hunter, low grade astrocytoma patient 

     

     

    What's on the agenda?

     

    That's up to you! We'll follow the questions and discussions ahead of the panel and try to build in many of the issues that arise. You can participate right now via Twitter, Facebook and email (see above).

     

    As a rough outline, we'd aim to covering at least some of the following:

     

    • Defining low grade and benign brain tumours?

    • What are some of the challenges with living with the condition?

    • What support is available – emotional and practical?

    • How do doctors, neurologists and surgeons work with low grade patients, and how can approaches be improved?

    • The future of low grade brain tumour research

     

     

    What are low grade brain tumours?

     

    Around 4,500 people in the UK every year are diagnosed with a low grade brain tumour.

     

    The World Health Organization (WHO) has introduced a classification system for brain tumours. They’re identified by examining cells from the tumour under a microscope. Low grades are I and II; high grades are III and IV.

     

    Grade I tumours most often occur in children, though they certainly do occur in adults too. They rarely progress to a higher grade, so aren’t considered life-threatening unless they are in a dangerous position. Though they certainly can have life-changing effects, they are often referred to as 'benign' tumours.

     

    Grade II tumours more frequently occur in adults and they do have the potential to transform into malignant and life threatening Grade III or IV tumours. Their rate of growth and transformation, though unpredictable, tends to be slow. Even if they remain Grade II, their growth alone can be life threatening.

     

    For both Grade I and Grade II brain tumours, patients have the challenge of understanding their condition, the various treatments available, learning to live with the tumour and facing an uncertain future.

     

    Symptoms often include memory loss, body weakness, epileptic seizures, headaches, fatigue, mood change, sight and hearing problems, and more.

     

    What’s important to remember is that while doctors can often tell you exactly what kind of low grade tumour you have (after MRI, biopsy or surgery), impact and prognosis is bound to vary from person to person. That’s because tumours vary in size, growth rates, location and aggressiveness.

     

    Just a short (but far from comprehensive list) of low grade brain tumours:

     

    Astrocytoma

    Acoustic neuroma

    Ependymoma

    Ganglioglioma

    Medulloblastoma

    Meningioma

    Mixed glioma

    Oligodendroglioma

    Pilocytic astrocytoma

    Pineal tumour

    Pituitary tumour

     

     

    Questions? Points to make? Experiences to share?

     

    Twitter hashtag: #LivingLowGrade

    Facebook comments: www.facebook.com/LivingLowGrade

    Email your questions and comments: LLG@ngomedia.org.uk

     

    We hope you will join us for the live broadcast on Wednesday 12th March at 7pm (GMT) and will join in the online discussion for this unique event.

     




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